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Preparing for care in an adult world
It can often be difficult to transition from childhood to adulthood, especially if you have an illness, or a developmental disability.
Now a new AHS website is helping pediatric patients with chronic conditions prepare for care within an adult health care system.
The website, Youth in Transition, was launched earlier this year and is aimed at patients ages 12 and up who have a chronic condition, such as diabetes, arthritis, muscular dystrophy, heart or kidney disease, cystic fibrosis, epilepsy or multiple sclerosis.
The website helps kids who will require ongoing health care throughout their adult life to transition.
The website was developed by the hospital's neuroscience and Well on Your Way transition staff and defines the difference between pediatric and adult care.
Young patients can find tips on taking charge of their own health care and support networks and resources available in their communities.
Ellen Beingessner, 20, has autism which affects her communication and social skills.
Beingessner's diagnosis is nothing new, but now that she's finished high school she doesn't have the support the school system once offered.
"The question every patient asks the doctor is what are they going to be like when they grow up?" said Dr. Margaret Clarke, Childhood Development Specialist. "I think in the area of autism we've done a great job of preparing the parents for the early stages."
Ellen recently enrolled at the Ability Hub, where she is learning everything from appropriate social interaction to simple life skills.
The facility is funded by the Sinneave Family Foundation and is aimed at helping teenagers and adults with Autism to reach their full potential.
Alberta Health Services says about 500 pediatric patients with chronic conditions transfer from Alberta Children's Hospital to the adult system every year.
News item
4 October 2011
