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Foetal Alcohol Syndrome interventions/programs?

2009

Hi
 
I was wondering if there are any known interventions and programmes for children having Foetal Alcohol Syndrome?
 
Regards
 

Alfred Harris
...


There are many documents outlining interventions and strategies suitable for children on the spectrum. One is the site listed below from Alberta:
http://education.alberta.ca/admin/special/resources/fasd.aspx
 
Here is another from Asante Centre
http://www.asantecentre.org/Family_Support_Resources.html
 
David Martin
...
 
Dear Alfred,
 
Although this is not an area of expertise for me, I did find a few resources for you by using a database search and a book search.  I would be willing to follow up on this if you would like copies of the articles abstracted below. Or of the book.
 
Nick Smiar 
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Anderson, B. (2000). Fetal alcohol syndrome - Prevention, diagnosis, treatment: A clinical guide for obstetric and pediatric providers. Cambridge, MA: Vida Communications. [CD ROM].
 
Bertrand, J. (2009, Sept.-Oct.). Interventions for children with fetal alcohol syndrome pectrum disorders (FASDs): Overview of findings for five innovative research projects. Research in Developmental Disabilities, (5), 986-1006.

ABSTRACT:
It is well established that prenatal exposure to alcohol causes damage to the developing fetus, resulting in a spectrum of disorders known as fetal alcohol spectrum disorders (FASDs). Although our understanding of the deficits and disturbances associated with FASDs is far from complete, there are consistent findings indicating these are serious, lifelong disabilities-especially when these disabilities result from central nervous system damage. Until recently, information and strategies for interventions specific to individuals with FASDs have been gleaned from interventions used with people with other disabilities and from the practical wisdom gained by parents and clinicians through trial and error or shared through informal networks. Although informative to a limited degree, such interventions have been implemented without being evaluated systematically or scientifically.
The purpose of this article is to provide a brief overview of a general intervention framework developed for individuals with FASDs and the methods and general findings of five specific intervention research studies conducted within this framework. The studies evaluated five different interventions in five diverse locations in the United States, with different segments of the FASD population. Nonetheless, all participants showed improvement in the target behaviors or skills, with four studies achieving statistical significance in treatment outcomes. Important lessons emerged from these five interventions that may explain success: including parent education or training, teaching children specific skills they would usually learn by observation or abstraction, and integration into existing systems of treatment. A major implication of these research studies for families dealing with FASDs is that there are now interventions available that can address their children's needs and that can be presented as scientifically validated and efficacious to intervention agents such as schools, social services and mental health providers. In the field of FASD research and clinical service, a common theme reported by families has been that clinicians and professionals have been reluctant to diagnose their children because there were no known effective treatments. Results of these five studies dispel that concern by demonstrating several interventions that have been shown to improve the lives of individuals with FASDs and their families.
__

Laugeson, E.A.; Paley, B.; Schonfeld, A.M.; Carpenter, E.M.; Framkel, F.; & O'Connor, M. J.  (2007).  Adaptation of the Children's Friendship Training Program for Children with fetal alcohol syndrome spectrum disorders.  Child & Family Behavior Therapy, 29(3),  57-69.

ABSTRACT:
Previous research attests to the marked impairments in social functioning exhibited by children with Fetal Alcohol Spectrum Disorders (FASD), suggesting that such children are in need of social skills intervention.
Recently, an existing evidence-based manualized behavioral treatment for improving children's friendships was implemented and demonstrated to be effective with children aged 6-12, diagnosed with FASD. In the present report, we describe methods for adapting this behavioral intervention in line with the specific cognitive and behavioral deficits seen in children with FASD and other developmental disabilities to enhance treatment efficacy. [ABSTRACT FROM AUTHOR]
 
Frankel, Fred. D., & Myatt, Robert J. (2002). Children's Friendship Training. New York: Routledge. [Paperback edition].
...
 
Dear Alfred
Try FASFACTS which is supported in your province and which last week had successful educational campaigns. They run excellent progammes in the rural areas of Western Cape.  Also the university of Cape Town Health Centres.
 
Contact the McGregor Family Centre which pioneered a special needs school for those affected by FAS and which has integrated community programmes for all vulnerable children.
 
Hope you find more help.
 
Ruth Bruintjies
Cape Town
...
An excellent Canadian resource for you is Debbie Michaud (Debbie.michaud@kpfs.com). 
 
The folks there is Sioux Lookout do quite a bit of work in this area and have also produced a very nice DVD featuring parents and foster parents dealing with children with FAS.  Her phone number is 807-737-3250.  Tell her Lorraine sent you.
 
Lorraine Fox
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